Normally I would share a bunch of pictures of our beautiful girl, but I have a heavy heart tonight. Today is our 4th day in the hospital, and every day we meet more and more people who are really going through far more than I could ever imagine. At one point in my life (not too long ago) I thought that having a child with down syndrome was possibly the worst thing that could ever "happen" to me. I look back now and realize how utterly ridiculous that was. Not only because our daughter is a beautiful gift from God and she has brought us more joy than we could have ever imagined, but because I now know that there are far more significant things people are dealing with. More important than an extra chromosome.
We were leaving the hospital tonight and there was a gentlemen in the elevator with us who was pulling a wagon full of stuff from the CVICU. He shared with us that his 7 year old son was having a heart transplant in 48 hours. They have been in the hospital over 2 months waiting for a heart, and they finally got the call at 9pm. I started crying right there. I cried because I was overcome with joy. Joy that his son was going to live! But wait.. in order for his son to live that meant that someone had to lose their child. I cried thinking about the pain that family must be feeling right now. How can that be? Crying for joy and sadness at the same time? WHY did someone have lose their child?! WHY did this child need a new heart in order to live!? The only thing that I kept thinking was "The Lord gave and the Lord has taken away. Blessed be the name of the Lord." Job 1:21
It brings tears to my eyes just thinking about it. It truly puts EVERYTHING in perspective. Everyone we have met here at ACH has been so genuinely kind. We all share a common bond - sick kids. We all know the pain of watching our children suffer and we all see how hard the doctors and nurses work to save our children's lives. It's so amazing. We are only 4 days into our "heart journey" but I know I have been changed for a lifetime.
Will you PLEASE join me in prayer for this little boy who has been given the gift of LIFE! Pray for his surgery and recovery. PLEASE pray for the family who lost their child tonight. I can not imagine the pain they are going through. And please continue to pray for our sweet Isabella. Pray that her blood pressure stays normal and that her echo tomorrow will show a fully repaired heart! Thank you!!